Division on Addiction, The Cambridge Health Alliance, a teaching affiliate of Harvard Medical School
You can download a dataset by clicking the download button located beneath each dataset description. The download button will direct you to a page that allows you access to text, SPSS, and SAS files, as well as dataset codebooks. People who are interested in downloading a dataset should register with the Transparency Project. The registration is quick and easy.
No. The data repository is only restricted to data related to addictive behavior.
You need access to a statistics software package that will open text, SPSS, or SAS files.
You can apply to upload a dataset by accessing the Contribute a Dataset page of this website. That page provides the requirements for contributing data to the Transparency Project (e.g. protecting the private health information of the project's participants by complying with IRB and HIPAA regulations).
The United States Department of Health and Human Resources has information on Health Information and Privacy, including the The Health Insurance Portability and Accountability Act of 1996 Privacy Rule. Their website is a great place to start: http://www.hhs.gov/ocr/privacy/index.html
In response to HIPAA's privacy rule, local Institutional Review Boards (IRBs) generally require the following protected health information to be excluded from datasets in order for them to be considered de-identified:
The Transparency Project is not designed to provide help to researchers regarding the individual datasets or their analyses. The Transparency Project is a database repository for open access to addiction-related databases. You can send questions related to access and contributions to firstname.lastname@example.org.
Yes! You can subscribe to the Transparency Project mailing list. People who join the mailing list will receive notification from the Transparency Project about updates and new datasets. The Transparency Project will not sell or distribute the mailing list.
Do the "Actual Internet Sports Gambling Activity from February 2005 through September 2005" datasets include information about betting with "promotional" money?
Our analytic dataset, "Actual Internet Sports Gambling Activity from February 2005 through September 2005" aggregated the daily betting activity only for the days after the first day a participant deposited money into his/her player account. The daily records of activity before the day of first deposit are in the raw dataset "UserDailyAggregation". In sum, this dataset does not include any information about promotional money from bwin (e.g., received promotional money or not, amount of promotional money received, etc).
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